Well, everyone, I have to get ready for bed, but Tomorrow morning, I will be doing a few posts.
I usually don't sleep at night, because my sinuses keep me up all night.
I have to sit up at night, (Sleep in a recliner, BECAUSE, If I sleep lying down, stuff drains into my sinuses, and I wake up the next morning, saying, "OH NOOOOOOOO.
I'm stopped up.
I NEED SOME OXYGEN.
AND I NEED SOMEONE TO DO MOUTH TO MOUTH ON ME."
hahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahaha.
Seriously.
I FEEL HOOOOOORRIBLE.
I have to suction my nose out A LOT more.
So, I have to sleep upright.
OR ELSE.
Well good night.
I will be doing PLEUNTY OF WRITING BEFORE 10:00, but after that, I WILL BE BOOKED FROM THEN UNTIL ABOUT 2:30 FRIDAY afternoon.
I am so happy I have a blog.
Well, GOOD NIGHT.
May God's angels watch over you, and may the sand man, put LOTS of sand in your eyes just not too much.
Good night.
Sleep tight.
Don't let the ANTIBLOG BUGS BITE.
If they do, than get your shoe, and beat them black and blue.
TELL THEM THIS.
"I am gonna write all the blogs I want to, and If YOU don't like it, well, THAT IS TOUGH LUCK.
GOOD BYE BUGS."
WHAAAAAAAAAAAAAAAAACK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Much Love and respect Peter Johann
Wednesday, October 29, 2008
Hi guys.
Hello.
How is it going?
I can't stop blogging.
I'm visually impaired, and sence I have to have a bit more help doing things, EVERYTHING NEW I DO, IS SUCH JOY.
So, I like to show it off, & so I am showing my blogging skills off.
LOL.
I am having fun doing this.
I am sitting here thinking about classical music.
I am listening to a story who learns a lesson of kindness.
I am also thinking about ECMO.
I wonder what the ECMO machine sounds like.
You see, sence I can't see very well at all, I must use sound, feeling, and other things, to help me.
So sounds THRILL ME.
Most people wanna throw pulse oximeters and other machines out the window, because the alarms MAKE THEM WANT TO SCREEEEEEEEEAM.
I on the other hand, LOVE the noise.
lol.
Well, I don't like the fact that a child or someone is desatting, or something like that, BUT,, I like the sound, because it signals that there is a machine nearby that I like.
SO I AM ON IT.
I'm there touching the machine, pushing buttons, etc.
Its my hobby.
Studying medical equipment.
I have had to spend my life around it, SO, I AM BOUND TO BE INTERESTED IN IT.
Much love and respect to ALL PETER JOHANN
How is it going?
I can't stop blogging.
I'm visually impaired, and sence I have to have a bit more help doing things, EVERYTHING NEW I DO, IS SUCH JOY.
So, I like to show it off, & so I am showing my blogging skills off.
LOL.
I am having fun doing this.
I am sitting here thinking about classical music.
I am listening to a story who learns a lesson of kindness.
I am also thinking about ECMO.
I wonder what the ECMO machine sounds like.
You see, sence I can't see very well at all, I must use sound, feeling, and other things, to help me.
So sounds THRILL ME.
Most people wanna throw pulse oximeters and other machines out the window, because the alarms MAKE THEM WANT TO SCREEEEEEEEEAM.
I on the other hand, LOVE the noise.
lol.
Well, I don't like the fact that a child or someone is desatting, or something like that, BUT,, I like the sound, because it signals that there is a machine nearby that I like.
SO I AM ON IT.
I'm there touching the machine, pushing buttons, etc.
Its my hobby.
Studying medical equipment.
I have had to spend my life around it, SO, I AM BOUND TO BE INTERESTED IN IT.
Much love and respect to ALL PETER JOHANN
Sorry for all the miss spelling.
Hello everybody!
How are you?
I just want to appologize for all the misspelling.
For some reason my computer appears to be really slow on my blog, so there are LOTS of misspellings because the computer left them out.
HMMMMMMMMMMMMMMm.
I don't know what's with it.
I usually can spell pretty well.
But anyhow.
God bless.
Much Love Peter Johann
How are you?
I just want to appologize for all the misspelling.
For some reason my computer appears to be really slow on my blog, so there are LOTS of misspellings because the computer left them out.
HMMMMMMMMMMMMMMm.
I don't know what's with it.
I usually can spell pretty well.
But anyhow.
God bless.
Much Love Peter Johann
Desat
Hi.
Have you ever seen a patient on a monitor desatting with IPV?
There is this video on YouTube, where this little baby is desaturating with
his IPV Treatment.
Could someone try to explain that to me?
I am just a little bit curious about that.
His mom told me that his lungs get relaxed with IPV, and that he tends to get REALLY apneic, but all IPV does, is try to loosen up secretions.
Intrapulmonary Percussive Ventilation.
Have you ever seen a patient on a monitor desatting with IPV?
There is this video on YouTube, where this little baby is desaturating with
his IPV Treatment.
Could someone try to explain that to me?
I am just a little bit curious about that.
His mom told me that his lungs get relaxed with IPV, and that he tends to get REALLY apneic, but all IPV does, is try to loosen up secretions.
Intrapulmonary Percussive Ventilation.
Hello.
Hi.
How are all of you doing?
I am doing very well.
I am kinda stopped up, but that is usually how I ALWAYS AM.
You see, even though I can breathe through the left side, the opening is no bigger, than a pinhole.
So, when I can breathe its with laber.
I am mainly a mouth breather, because of my nose, but when my nose gets clogged up, I am SICK SICK SICK.
It is NO FUN.
Its absolutely NO FUN.
I am doing pretty well though.
I am sitting in my room, and thinking about medical equipment.
lol.
That's usually waht I think about in my free time.
Tomorrow I will be in school from 10:00 to about 8:30.
I have a teacher that comes out here, because I can't go to a regular school, because the Germs would kill me.
But after he leaves, I go to Somerset.
I work at a lady's house and she teaches me Chemistry, braille, and Arts and humanity.
I just finished spanish, and am now going to arts and HUMANITY.
The school teacher that comes out here from 10:00 to 12:00 teaches me history, Literature, English, and all that.
I then go to Somerset and work from 2:30 to 8:30.
Then I stay at an apartment and go back to school from about 8:30 to 12:30.
I then come home.
IT IS A HARD EXPERIENCE, but I do fine.
Although, the apartment is VERY DRY, so I tend to have to get my suction machine there and REALLY GET THICK SECRETIONS OUT.
I will be back, and do more blogging.
Well, God bless.
Much Love and respect.
Peter Johann
How are all of you doing?
I am doing very well.
I am kinda stopped up, but that is usually how I ALWAYS AM.
You see, even though I can breathe through the left side, the opening is no bigger, than a pinhole.
So, when I can breathe its with laber.
I am mainly a mouth breather, because of my nose, but when my nose gets clogged up, I am SICK SICK SICK.
It is NO FUN.
Its absolutely NO FUN.
I am doing pretty well though.
I am sitting in my room, and thinking about medical equipment.
lol.
That's usually waht I think about in my free time.
Tomorrow I will be in school from 10:00 to about 8:30.
I have a teacher that comes out here, because I can't go to a regular school, because the Germs would kill me.
But after he leaves, I go to Somerset.
I work at a lady's house and she teaches me Chemistry, braille, and Arts and humanity.
I just finished spanish, and am now going to arts and HUMANITY.
The school teacher that comes out here from 10:00 to 12:00 teaches me history, Literature, English, and all that.
I then go to Somerset and work from 2:30 to 8:30.
Then I stay at an apartment and go back to school from about 8:30 to 12:30.
I then come home.
IT IS A HARD EXPERIENCE, but I do fine.
Although, the apartment is VERY DRY, so I tend to have to get my suction machine there and REALLY GET THICK SECRETIONS OUT.
I will be back, and do more blogging.
Well, God bless.
Much Love and respect.
Peter Johann
Mozart
Anyone like Mozart?
W.A. Mozart?????????
Nice music eh?
He's a pretty good composer.
I like him.
He's one of my favorites.
I think my favorite piece from HIM, is the Minuet in C Major.
I aBSOLUTELY LOVE HIS FATHER'S MINUET IN C MAJOR.
Well, have a goo day.
God bless.
Lots of Love from Peter Johann
W.A. Mozart?????????
Nice music eh?
He's a pretty good composer.
I like him.
He's one of my favorites.
I think my favorite piece from HIM, is the Minuet in C Major.
I aBSOLUTELY LOVE HIS FATHER'S MINUET IN C MAJOR.
Well, have a goo day.
God bless.
Lots of Love from Peter Johann
Story
All right.
I like to doodle around with stories and cool things.
So I am going to write a little story about stuff I like to write about.
Here is a medium sized story of something that I am going to make up.
All right.
I am going to check your oxygen sir.
All right.
When can I leave?
Whenever your chest X-Ray comes back.
All right.
If IT IS GOOD.
If everything looks all right, and you don't have any spots on there, than you can leave.
All right.
HMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMM.
Your oxygen saturations are only 86%.
I'm going to put you on some oxygen.
WHAT????????????????????????????????????????????
I am not breathing well?
Well, your breathing fine, BUT you just need a little bit of extra oxygen.
All right.
i am going to put these things in your nose.
WELL, I don't call that my nose.
OOPSY.
Sorry.
I stuck it on your eye.
Sorry about that.
All right.
Please be careful though.
All right.
THIS IS A SON OF A GUN UNCOMFORTABLE.
WOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Please get this out.
I'm sorry, but we can't.
WHY?
Because your oxygen is low, and we need to get it back up.
AHHHH.
Get these out.
I don't want to make you lose anymore oxygen so I am going to keep your oxygen on.
All right.
AT LEAST UNTIL your oxygen comes up.
All right.
I guess that's all right.
A few minutes later.
I need to turn your oxygen up to 2 LPM.
Your sats are only 82%.
PLEASE TURN THE BEEPING OFF>
PLEEEEEEEEEEEEASE.
That is just the pulse ox.
A WHAT?
The thing on your finger.
It measures your oxygen levels in your blood.
All right.
I see.
It is VERY UNCOMFORTABLE WITH THESE THINGS IN MY NOSE.
I am sorry.
A few minutes later.
Swich him to a Non-rebreather mask.
All right.
He's in the 70s.
ALL RIGHT.
A few minutes later.
Your Chest X-Ray is good, but your sats are very low, so I am going to have to keep you in overnight to do some tests.
All right.
What kind of tests.
I will be doing an ABG.
Arterial Blood gas.
That is where I will stick a big needle in your artery, and take some arterial blood out.
I will then test it, and see if your gases in the blood are VERY HIGH, or messed up.
All right.
About 6:00 that night.
All right.
PLEASE TAKE THIS I.V. out.
Its getting on my last nerve.
I'm sorry, but we can't do that.
WHY NOOOOOOOT?
Because you need to be given fluids.
All right.
I am going to do the blood gas test now.
All right.
Several seconds later.
All right.
You are going to feel a big stick.
All right.
AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH.
Sorry.
WHAT WAS THAT FOR?
I just had to get some blood out.
A few minutes later.
The blood gasses are normal.
The co2 is a little bit out of whack, but I am going to just keep him on the oxygen, and tomorrow if he is all right, than I will do another ABG, and a CBC.
And if those are good, than he can go home.
All right.
7:30 that night.
All right.
Something is creepy here.
His sats are now 78%, and he's on 100% oxygen.
I'm affraid there is only ONE MORE THING WE CAN DO.
What?????????
Sir?
We're going to have to put you on a ventilator.
WHAT?????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????
I AM NOT GONNA LET YOU PUT A TUBE DOWN MY THROAT.
I'm sorry, but I need to get your sats up, or you could die.
All right.
A few minutes later.
So, I will numb your throat, and then I will be inserting the endotracheal tube down.
All right.
Your sats are getting lower by the Minute.
All right.
I'm going to give you something to relax you.
All right.
I will put it in your IV NOW.
All right.
A few seconds later.
Bag him.
His sats are dropping.
30 seconds later.
All right.
I am going to insert the tube.
All right.
10 seconds later.
I can't see.
GIVE ME SOME SUCTION.
All right.
20 seconds later.
YIKES.
Saturations?
80 and dropping.
BAG HIM.
ALL RIGHT.
One minute later.
I'm inserting the tube.
All right.
I'm in.
BAG HIM.
I'll pressurize the vent.
All right.
His blood oxygen saturations are coming up.
THAT IS GREAT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
A few minutes later.
YES!
I am so happy.
The sats are now 100%.
All right.
Let's get him to the ICU.
All right.
That's just a bit of a story a series of hundreds that I like to fiddle around with.
Well, have a good day.
God bless.
LOTS OF LOVE FROM PETER.
I like to doodle around with stories and cool things.
So I am going to write a little story about stuff I like to write about.
Here is a medium sized story of something that I am going to make up.
All right.
I am going to check your oxygen sir.
All right.
When can I leave?
Whenever your chest X-Ray comes back.
All right.
If IT IS GOOD.
If everything looks all right, and you don't have any spots on there, than you can leave.
All right.
HMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMM.
Your oxygen saturations are only 86%.
I'm going to put you on some oxygen.
WHAT????????????????????????????????????????????
I am not breathing well?
Well, your breathing fine, BUT you just need a little bit of extra oxygen.
All right.
i am going to put these things in your nose.
WELL, I don't call that my nose.
OOPSY.
Sorry.
I stuck it on your eye.
Sorry about that.
All right.
Please be careful though.
All right.
THIS IS A SON OF A GUN UNCOMFORTABLE.
WOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Please get this out.
I'm sorry, but we can't.
WHY?
Because your oxygen is low, and we need to get it back up.
AHHHH.
Get these out.
I don't want to make you lose anymore oxygen so I am going to keep your oxygen on.
All right.
AT LEAST UNTIL your oxygen comes up.
All right.
I guess that's all right.
A few minutes later.
I need to turn your oxygen up to 2 LPM.
Your sats are only 82%.
PLEASE TURN THE BEEPING OFF>
PLEEEEEEEEEEEEASE.
That is just the pulse ox.
A WHAT?
The thing on your finger.
It measures your oxygen levels in your blood.
All right.
I see.
It is VERY UNCOMFORTABLE WITH THESE THINGS IN MY NOSE.
I am sorry.
A few minutes later.
Swich him to a Non-rebreather mask.
All right.
He's in the 70s.
ALL RIGHT.
A few minutes later.
Your Chest X-Ray is good, but your sats are very low, so I am going to have to keep you in overnight to do some tests.
All right.
What kind of tests.
I will be doing an ABG.
Arterial Blood gas.
That is where I will stick a big needle in your artery, and take some arterial blood out.
I will then test it, and see if your gases in the blood are VERY HIGH, or messed up.
All right.
About 6:00 that night.
All right.
PLEASE TAKE THIS I.V. out.
Its getting on my last nerve.
I'm sorry, but we can't do that.
WHY NOOOOOOOT?
Because you need to be given fluids.
All right.
I am going to do the blood gas test now.
All right.
Several seconds later.
All right.
You are going to feel a big stick.
All right.
AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH.
Sorry.
WHAT WAS THAT FOR?
I just had to get some blood out.
A few minutes later.
The blood gasses are normal.
The co2 is a little bit out of whack, but I am going to just keep him on the oxygen, and tomorrow if he is all right, than I will do another ABG, and a CBC.
And if those are good, than he can go home.
All right.
7:30 that night.
All right.
Something is creepy here.
His sats are now 78%, and he's on 100% oxygen.
I'm affraid there is only ONE MORE THING WE CAN DO.
What?????????
Sir?
We're going to have to put you on a ventilator.
WHAT?????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????
I AM NOT GONNA LET YOU PUT A TUBE DOWN MY THROAT.
I'm sorry, but I need to get your sats up, or you could die.
All right.
A few minutes later.
So, I will numb your throat, and then I will be inserting the endotracheal tube down.
All right.
Your sats are getting lower by the Minute.
All right.
I'm going to give you something to relax you.
All right.
I will put it in your IV NOW.
All right.
A few seconds later.
Bag him.
His sats are dropping.
30 seconds later.
All right.
I am going to insert the tube.
All right.
10 seconds later.
I can't see.
GIVE ME SOME SUCTION.
All right.
20 seconds later.
YIKES.
Saturations?
80 and dropping.
BAG HIM.
ALL RIGHT.
One minute later.
I'm inserting the tube.
All right.
I'm in.
BAG HIM.
I'll pressurize the vent.
All right.
His blood oxygen saturations are coming up.
THAT IS GREAT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
A few minutes later.
YES!
I am so happy.
The sats are now 100%.
All right.
Let's get him to the ICU.
All right.
That's just a bit of a story a series of hundreds that I like to fiddle around with.
Well, have a good day.
God bless.
LOTS OF LOVE FROM PETER.
Pulse oximeter
beep beep beep--beep beep
What's that noise?
Its a pulse oximeter.
The Masimo.
Its a Masimo Radical 7.
It is on a patient in a patient room.
The patient's heart rate is a little too high.
The monitor is going off.
A Pulse oximeter, is one of my favorite pieces.
Its a device that clips or tapes onto a patient's finger, and has a little red light in the finger sensor.
It measures the oxygen levels, and the heart rate.
If a pulse oximeter goes off, that means either the sensor has come off, the Spo2 (Oxygen is too Low, or High), the Heart rate is too low or high, or its not getting a good reading.
The normal oxygen levels are between 90 and 100.
Well, for children who have breathing problems like Me, a good saturation level would be from about 95%, to 100.
So, if you ever have to have one of those used on you, remember that it doesn't hurt, it just measures your Oxygen saturations in the BLOOD, and your heart beat.
Some even beep to your pulse.
Well, that's a short Medicine lesson for today.
I'll have several lessons each day, and ONE BIIIIIIIIIIIIIIG LESSON EACH DAY.
Love and Happiness to EVERYON!!!!!!!!!!!!!!!!!!!!
What's that noise?
Its a pulse oximeter.
The Masimo.
Its a Masimo Radical 7.
It is on a patient in a patient room.
The patient's heart rate is a little too high.
The monitor is going off.
A Pulse oximeter, is one of my favorite pieces.
Its a device that clips or tapes onto a patient's finger, and has a little red light in the finger sensor.
It measures the oxygen levels, and the heart rate.
If a pulse oximeter goes off, that means either the sensor has come off, the Spo2 (Oxygen is too Low, or High), the Heart rate is too low or high, or its not getting a good reading.
The normal oxygen levels are between 90 and 100.
Well, for children who have breathing problems like Me, a good saturation level would be from about 95%, to 100.
So, if you ever have to have one of those used on you, remember that it doesn't hurt, it just measures your Oxygen saturations in the BLOOD, and your heart beat.
Some even beep to your pulse.
Well, that's a short Medicine lesson for today.
I'll have several lessons each day, and ONE BIIIIIIIIIIIIIIG LESSON EACH DAY.
Love and Happiness to EVERYON!!!!!!!!!!!!!!!!!!!!
Classical music
Here is a bit of what I think about classical music.
I love classical music with all my heart, soul, and MIND.
Classical music is so beautiful.
One of my favorite pieces in the Minuet in E Flat by CPE Bach.
Another one is the Brahms Lullaby.
Man.
That's almost like a Minuet.
It sounds like a Minuet, but alost like a Waltz too.
Classical music is an old noble art.
If you listen to it, than it will make you smart.
I have about 130 classical C.D.s, and still need more.
Classical music beats RAP, and Hip Hop by 8676895769485674968759675986789678947689576.
I don't like Rap and Hip Hop, because they don't have any feeling to them, except sadness, and to me a very depressing feeling.
I mean, a lot of it is stuff like, this.
My Girl left me today, and I am so blue. I need some money, oh what can I do.
I got a speeding ticket cause i was going 60 Miles an hour.
I couldn't talk him out of it, because i didn't have that power.
So now I have to go to court, and pay a major fine.
I didn't see the speed limit.
I didn't see the Sign.
I'm sorry officer for speeding down the road.
My car is getting dirty and the weather is getting cold.
Please don't give me a speeding ticket, because I won't do it again.
I know it was wrong, and I need forgivness for my sin.
All that.
I didn't do a very good job of that, but who cares?
I hate Rap and HOP HOP.
I'll take classical music anytime.
CLASSICAL MUSIC ROCKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I mean, I love it.
Classical music is soft and slow, and it can be happy and loud.
I will do ANYTHING for classical music, and will do NOTHING for Hip Hop or rap.
So, keep that junk to yourself.
I'll keep my beautiful music to myself.
NO.
I'll share it with anyone who wants to listen to it.
1992peter
username on YouTube.
Check it out.
1992peter
Thanks!
Lots of Love.
PETER!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I love classical music with all my heart, soul, and MIND.
Classical music is so beautiful.
One of my favorite pieces in the Minuet in E Flat by CPE Bach.
Another one is the Brahms Lullaby.
Man.
That's almost like a Minuet.
It sounds like a Minuet, but alost like a Waltz too.
Classical music is an old noble art.
If you listen to it, than it will make you smart.
I have about 130 classical C.D.s, and still need more.
Classical music beats RAP, and Hip Hop by 8676895769485674968759675986789678947689576.
I don't like Rap and Hip Hop, because they don't have any feeling to them, except sadness, and to me a very depressing feeling.
I mean, a lot of it is stuff like, this.
My Girl left me today, and I am so blue. I need some money, oh what can I do.
I got a speeding ticket cause i was going 60 Miles an hour.
I couldn't talk him out of it, because i didn't have that power.
So now I have to go to court, and pay a major fine.
I didn't see the speed limit.
I didn't see the Sign.
I'm sorry officer for speeding down the road.
My car is getting dirty and the weather is getting cold.
Please don't give me a speeding ticket, because I won't do it again.
I know it was wrong, and I need forgivness for my sin.
All that.
I didn't do a very good job of that, but who cares?
I hate Rap and HOP HOP.
I'll take classical music anytime.
CLASSICAL MUSIC ROCKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I mean, I love it.
Classical music is soft and slow, and it can be happy and loud.
I will do ANYTHING for classical music, and will do NOTHING for Hip Hop or rap.
So, keep that junk to yourself.
I'll keep my beautiful music to myself.
NO.
I'll share it with anyone who wants to listen to it.
1992peter
username on YouTube.
Check it out.
1992peter
Thanks!
Lots of Love.
PETER!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Hi.
How are you doing?
I am just doing another post.
I thought you might like some more posts.
As I wrote in my previous posts, I have a YouTube account.
Whenever I get a chance, I will post the URL on my YouTube channel, so people who view my YouTube channel can go to my website, and see my blog.
I thought you might like it if I shared some of the information about HFOV I have been looking up.
Basically I am going to tell you all about HFOV.
If your baby has ever been in the NICU, than you might have heard the term oscillator.
HFOV is short for (High Frequency Oscillatory Ventilation(R).
HFOV is used in the NICU or ICU, for patients who's lungs can't take the strane of a conventional ventilator.
All right.
Let's say our baby is in the NICU.
He is on the conventional ventilator.
But his lungs are so stiff, and uncompliant, that the ventilator alarm keeps going off. Well, what is the first thing they might do?
One thing they might do if they have NOT already done it is to try Surfactant.
Its a substance that kinda is like soup. Well, it keeps the lungs moist, I think.
If a baby doesn't have it, than they can't breathe very well.
Some premature babies need it, because their lungs are not fully developed enough, to start producing surfactant.
Well, let's contiue.
If the surfactant does NOT work, than they might try increasing the baby's vent settings.
UH OH.
The Doctor says as he is listening to your baby's lungs.
This is not good.
Someone get a pleuravac, so we can get a chest tube in.
He has a pneumothorax.
A WHAT????????????????????????????????
Pneumothorax.
nu-mo-thor-ax
Your baby's sats are still plummettting, into the lower 80s, and the mid to upper 70s.
So, they put a chest tube in.
A Pneumothorax is a hole in the plural space of the chest wall.
Air leaks into the space and ends up causing a collapsed lung.
A chest tube is inserted to drain the air out, while the lung is healing.
But even that doesn't work.
So, the Doctor comes in, and says, "Sit down please.
What's the matter?
Doctor?
This ventilator will have to go.
I'm going to have to place him on a machine called the oscillator.
What?
This device is a ventilator, that pushes little tiny puffs of air and oxygen into the baby's lungs at a rate of 700 to up to 12,00 BPM.
This device is used for baby's lungs, who can't withstand the stress of a conventional ventilator blowing BIG puffs of air at a slow rate.
This machine is brought in.
The Doctor explains that it will be A LOT easier because not only will it allow for your baby's lungs to heal, it will puff gentle puffs of air into the lungs, at a VERY HIGH RATE, thus ventilating the baby at the same time, not putting the stress on a baby's lungs, and letting them HEAL.
"
The ventilator is hooked up to your baby.
It is a scarey looking machine.
Its set to 800BPM.
Your baby's body is shaking to the machine.
The baby is vibrating kind of like.
Why is my baby vibrating to this machine?
Its because the lungs are being ventilated at several hundred Breaths Per Minute, and the chest is shaking because of the air that is being put into them.
The oscillator itself isn't making the baby shake.
Its the air that comes out of the oscillator that is going into the lungs, and making them go up and down very very very very very very very very very QUICKLY.
So, a few days go bye, and your taby is FINALLY taken off the oscillator.
NO.
The ECMO machine isn't needed.
We'll talk about that machine later.
But the baby gets off the oscillating ventilator, and gets to be put back on his old friend.
THE CONVENTIONAL VENT.
Oh no.
The lungs are starting to get stiff again.
Don't worry.
We'll just turn the vent down to where its not so hard on the lungs.
But what if that doesn't help?
We will have to put him back on the oscillator again.
All right.
Well, now that I understand a little bit more about the oscillaing ventilator, its not so scarey to see him on it.
BUT I STILL WANT TO SEE HIM COME HOME WITH ME.
AWWWWWWWWWWWWWWWWWWWWWW.
Don't you worr.
YOUR BABY WILL GO HOME WITH YOU.
A few weeks later, he goes home with you.
So, now you know more about the HFOV.
So, when your Doctor talks about the oscillator, you will be a bit more informed.
OTHER NAMES FOR THE OSCILLATOR.
HFOV, oscillating vent, oscillatory vent oscillating ventilator oscillatory ventilator oscillating breathing machine, high frequency vent high frequency oscillator high frequency oscillatory vent High frequency oscillating machine.
Tomorrow's topic.
ECMO
How are you doing?
I am just doing another post.
I thought you might like some more posts.
As I wrote in my previous posts, I have a YouTube account.
Whenever I get a chance, I will post the URL on my YouTube channel, so people who view my YouTube channel can go to my website, and see my blog.
I thought you might like it if I shared some of the information about HFOV I have been looking up.
Basically I am going to tell you all about HFOV.
If your baby has ever been in the NICU, than you might have heard the term oscillator.
HFOV is short for (High Frequency Oscillatory Ventilation(R).
HFOV is used in the NICU or ICU, for patients who's lungs can't take the strane of a conventional ventilator.
All right.
Let's say our baby is in the NICU.
He is on the conventional ventilator.
But his lungs are so stiff, and uncompliant, that the ventilator alarm keeps going off. Well, what is the first thing they might do?
One thing they might do if they have NOT already done it is to try Surfactant.
Its a substance that kinda is like soup. Well, it keeps the lungs moist, I think.
If a baby doesn't have it, than they can't breathe very well.
Some premature babies need it, because their lungs are not fully developed enough, to start producing surfactant.
Well, let's contiue.
If the surfactant does NOT work, than they might try increasing the baby's vent settings.
UH OH.
The Doctor says as he is listening to your baby's lungs.
This is not good.
Someone get a pleuravac, so we can get a chest tube in.
He has a pneumothorax.
A WHAT????????????????????????????????
Pneumothorax.
nu-mo-thor-ax
Your baby's sats are still plummettting, into the lower 80s, and the mid to upper 70s.
So, they put a chest tube in.
A Pneumothorax is a hole in the plural space of the chest wall.
Air leaks into the space and ends up causing a collapsed lung.
A chest tube is inserted to drain the air out, while the lung is healing.
But even that doesn't work.
So, the Doctor comes in, and says, "Sit down please.
What's the matter?
Doctor?
This ventilator will have to go.
I'm going to have to place him on a machine called the oscillator.
What?
This device is a ventilator, that pushes little tiny puffs of air and oxygen into the baby's lungs at a rate of 700 to up to 12,00 BPM.
This device is used for baby's lungs, who can't withstand the stress of a conventional ventilator blowing BIG puffs of air at a slow rate.
This machine is brought in.
The Doctor explains that it will be A LOT easier because not only will it allow for your baby's lungs to heal, it will puff gentle puffs of air into the lungs, at a VERY HIGH RATE, thus ventilating the baby at the same time, not putting the stress on a baby's lungs, and letting them HEAL.
"
The ventilator is hooked up to your baby.
It is a scarey looking machine.
Its set to 800BPM.
Your baby's body is shaking to the machine.
The baby is vibrating kind of like.
Why is my baby vibrating to this machine?
Its because the lungs are being ventilated at several hundred Breaths Per Minute, and the chest is shaking because of the air that is being put into them.
The oscillator itself isn't making the baby shake.
Its the air that comes out of the oscillator that is going into the lungs, and making them go up and down very very very very very very very very very QUICKLY.
So, a few days go bye, and your taby is FINALLY taken off the oscillator.
NO.
The ECMO machine isn't needed.
We'll talk about that machine later.
But the baby gets off the oscillating ventilator, and gets to be put back on his old friend.
THE CONVENTIONAL VENT.
Oh no.
The lungs are starting to get stiff again.
Don't worry.
We'll just turn the vent down to where its not so hard on the lungs.
But what if that doesn't help?
We will have to put him back on the oscillator again.
All right.
Well, now that I understand a little bit more about the oscillaing ventilator, its not so scarey to see him on it.
BUT I STILL WANT TO SEE HIM COME HOME WITH ME.
AWWWWWWWWWWWWWWWWWWWWWW.
Don't you worr.
YOUR BABY WILL GO HOME WITH YOU.
A few weeks later, he goes home with you.
So, now you know more about the HFOV.
So, when your Doctor talks about the oscillator, you will be a bit more informed.
OTHER NAMES FOR THE OSCILLATOR.
HFOV, oscillating vent, oscillatory vent oscillating ventilator oscillatory ventilator oscillating breathing machine, high frequency vent high frequency oscillator high frequency oscillatory vent High frequency oscillating machine.
Tomorrow's topic.
ECMO
Hello.
I am back.
I am just sitting here, thinking about medical equipment.
You know, I keep thinking about Tay-Sachs disease.
I mean, there was an article I read in January, that really broke my heart.
Its about this little boy named Evan who was born with Tay-Sachs disease, and they didn't know it until he was about six months of age.
They had genetic testing, to see if the parents were carriers of the Tay-Sachs Gene, but they were told they were NOT.
A Mistake is telling someone they have the flu when they have a minor cold.
A mistake can't even begin to describe the destruction they caused Evan's family.
The article name, "They said the baby was fine. He wasn't."
If you would like, feel free to check it out, but I highly recomment you don't, because Its so sad.
Every sence I read it, there is this coding of sadness that I have felt.
The winter seemed to make it worse.
When the spring began, it seemed to die down, but i still feel for Evan's family.
I mean, picture this.
You had a baby boy.
He appeared normal, until about six months.
You noticed that he started falling behind.
He wouldn't sit up, he wouldn't even roll over.
You saw cherry red spots on his eyes.
You take him to the Dr.
Doctor?
What is wrong with my baby?
He does testing, and finds out that your baby has Tay-Sachs disease.
You are devistated with the news.
Well, you say to yourself, I was told we were not carriers of the Tay-Sachs ghene.
Well, you call the Dr. That tested you all, and he calls back, and said, "Oops. You and your husband are carriers."
That is worse than a Mistake.
THAT IS WHAT NO FAMILY NO MATTER HOW MEAN THEY ARE TO YOU, OR ANYONE SHOULD HAVE TO GO THROUGH.
I mean, that would be absolutely DEVISTATING.
I hate it when I hear that a child has Tay-Sachs or Sandhoff disease which is similar to Tay-Sachs only HEXB is missing.
In Tay-Sachs HEXA is missing.
Sandhoff disease is ALWAYS fatal too.
Now there are three forms of Tay-Sachs.
Classical infantile, which is what we are talking about, Juvenile Onset which is where some of the enzyme HEXA is present, but not enough, and it is usually fatal between the ages of 10-15 years of age, and LATE ONSET TAY-SACHS DISEASE.
Most of the enzyme is present, but not all of it.
This usually appears in the late teens, early adulthook, and usually is NOT fatal.
Well, God bless, and i will talk to you again.
Have a beautiful day.
Lots of Lovefrom Peter Johann
I am back.
I am just sitting here, thinking about medical equipment.
You know, I keep thinking about Tay-Sachs disease.
I mean, there was an article I read in January, that really broke my heart.
Its about this little boy named Evan who was born with Tay-Sachs disease, and they didn't know it until he was about six months of age.
They had genetic testing, to see if the parents were carriers of the Tay-Sachs Gene, but they were told they were NOT.
A Mistake is telling someone they have the flu when they have a minor cold.
A mistake can't even begin to describe the destruction they caused Evan's family.
The article name, "They said the baby was fine. He wasn't."
If you would like, feel free to check it out, but I highly recomment you don't, because Its so sad.
Every sence I read it, there is this coding of sadness that I have felt.
The winter seemed to make it worse.
When the spring began, it seemed to die down, but i still feel for Evan's family.
I mean, picture this.
You had a baby boy.
He appeared normal, until about six months.
You noticed that he started falling behind.
He wouldn't sit up, he wouldn't even roll over.
You saw cherry red spots on his eyes.
You take him to the Dr.
Doctor?
What is wrong with my baby?
He does testing, and finds out that your baby has Tay-Sachs disease.
You are devistated with the news.
Well, you say to yourself, I was told we were not carriers of the Tay-Sachs ghene.
Well, you call the Dr. That tested you all, and he calls back, and said, "Oops. You and your husband are carriers."
That is worse than a Mistake.
THAT IS WHAT NO FAMILY NO MATTER HOW MEAN THEY ARE TO YOU, OR ANYONE SHOULD HAVE TO GO THROUGH.
I mean, that would be absolutely DEVISTATING.
I hate it when I hear that a child has Tay-Sachs or Sandhoff disease which is similar to Tay-Sachs only HEXB is missing.
In Tay-Sachs HEXA is missing.
Sandhoff disease is ALWAYS fatal too.
Now there are three forms of Tay-Sachs.
Classical infantile, which is what we are talking about, Juvenile Onset which is where some of the enzyme HEXA is present, but not enough, and it is usually fatal between the ages of 10-15 years of age, and LATE ONSET TAY-SACHS DISEASE.
Most of the enzyme is present, but not all of it.
This usually appears in the late teens, early adulthook, and usually is NOT fatal.
Well, God bless, and i will talk to you again.
Have a beautiful day.
Lots of Lovefrom Peter Johann
Hi everyone.
I am just sitting in my room, and am so excited that I will b doing hourly posts, to tell you what has been happening.
I just want to say, That I will be doing TONS, AND TONS OF BLOGGING Over the next few weeks.
At the MOST seven to NINE times a day.
LOL.
Its just fun.
Now I am gonna give you some info of the medical equipment I like, as you read in my first or maybe second post.
But I ESPECIALLY love pulse oximeters.
One of my favorites is the Ohmeda 3760P.
Its a pulse oximeter with black numbers on a green lit background.
It has a blue on button, and has alarm limits, and an alarm silence button.
If you know anyone or have someone who uses it, please E-Mail me.
I also like the Ohmeda TruSat 3500.
Its a pulse oximeter with ONLY THREE BUTTONS, and it has all the features of a regular bedside monitor in less than HALF the size of a bedside monitor.
GE Datex Ohmeda TruSat 3500.
It hase audio pulse beat, alarm limits, and even has an external printer.
Well, I need to go and eat, but I will get back later.
I eat a special kind of formula, because I can't eat real food.
I eat something called Pediasure.
Its a liquid that I drink.
Because of the way my mouth was formed, I can't chew like most people.
You know, I can't taste or SMELL AT ALL.
So eating just means, uh oh.
Peter? What? You need to eat.
AHHHHHHHHHHHHHHHH MOM?
I am in the middle of looking up HFOV.
I am studying an oscillatory ventilator.
Can I wait until tomorrow?
No.
So, eating is just something I do, and get it over with.
People ask me if I miss not being able to taste, and i say, "I never could, so I don't mind."
People say I am lucky that I can't smell.
lol.
I guess maybe I am.
hahahahahahahahaha.
I can't swallow very well, so sometimes I get choked on my formula and end up desatting.
I have desatted down to 60 before.
I LOVE medical equipment.
Well, gotta go, and eat.
BOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO.
lol.
God bless you Lots of Love to EVERYONE!!!!!!!!
I am just sitting in my room, and am so excited that I will b doing hourly posts, to tell you what has been happening.
I just want to say, That I will be doing TONS, AND TONS OF BLOGGING Over the next few weeks.
At the MOST seven to NINE times a day.
LOL.
Its just fun.
Now I am gonna give you some info of the medical equipment I like, as you read in my first or maybe second post.
But I ESPECIALLY love pulse oximeters.
One of my favorites is the Ohmeda 3760P.
Its a pulse oximeter with black numbers on a green lit background.
It has a blue on button, and has alarm limits, and an alarm silence button.
If you know anyone or have someone who uses it, please E-Mail me.
I also like the Ohmeda TruSat 3500.
Its a pulse oximeter with ONLY THREE BUTTONS, and it has all the features of a regular bedside monitor in less than HALF the size of a bedside monitor.
GE Datex Ohmeda TruSat 3500.
It hase audio pulse beat, alarm limits, and even has an external printer.
Well, I need to go and eat, but I will get back later.
I eat a special kind of formula, because I can't eat real food.
I eat something called Pediasure.
Its a liquid that I drink.
Because of the way my mouth was formed, I can't chew like most people.
You know, I can't taste or SMELL AT ALL.
So eating just means, uh oh.
Peter? What? You need to eat.
AHHHHHHHHHHHHHHHH MOM?
I am in the middle of looking up HFOV.
I am studying an oscillatory ventilator.
Can I wait until tomorrow?
No.
So, eating is just something I do, and get it over with.
People ask me if I miss not being able to taste, and i say, "I never could, so I don't mind."
People say I am lucky that I can't smell.
lol.
I guess maybe I am.
hahahahahahahahaha.
I can't swallow very well, so sometimes I get choked on my formula and end up desatting.
I have desatted down to 60 before.
I LOVE medical equipment.
Well, gotta go, and eat.
BOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO.
lol.
God bless you Lots of Love to EVERYONE!!!!!!!!
Hi.
I just got back helping my caregiver with the winter clothes.
We brought some out from the shed.
THE SHED IS A HUGE MESS, so we are always getting hurt on something.
I fell back on a box that we hade already brought out.
We brought one box out, of clothes, and we were bringing another one in, BUT I was going down the steps, my caregiver had one end, and I had the other end of the closed plastick box.
Well, I UNFORTUNATLY FORGOT THAT THERE WAS A BOX ON THE GROUND.
I fell back, and we both started CRACKING UP LAUGHING.
Well, Thanks for taking the time to read.
I just got back helping my caregiver with the winter clothes.
We brought some out from the shed.
THE SHED IS A HUGE MESS, so we are always getting hurt on something.
I fell back on a box that we hade already brought out.
We brought one box out, of clothes, and we were bringing another one in, BUT I was going down the steps, my caregiver had one end, and I had the other end of the closed plastick box.
Well, I UNFORTUNATLY FORGOT THAT THERE WAS A BOX ON THE GROUND.
I fell back, and we both started CRACKING UP LAUGHING.
Well, Thanks for taking the time to read.
Hi.
How are you all?
I am just sitting in my room on my computer.
I will be telling you what happens in the day, and how its going for me I hope you will enjoy my blog postings, and if you would like you may check out my YouTube account.
my username on youtube is 1992peter
Just go to YouTube, and in the search bar type 1992peter
You will see videos by me.
If you are a YouTube member you can comment on my videos.
Thank you!
199peter
no caps or spaces.
Just as I wrote it.
How are you all?
I am just sitting in my room on my computer.
I will be telling you what happens in the day, and how its going for me I hope you will enjoy my blog postings, and if you would like you may check out my YouTube account.
my username on youtube is 1992peter
Just go to YouTube, and in the search bar type 1992peter
You will see videos by me.
If you are a YouTube member you can comment on my videos.
Thank you!
199peter
no caps or spaces.
Just as I wrote it.
Hello.
My name is Peter Johann Pachelbel, and I am a tender hearted young man, who cares a LOT about people. All of us are equal in the eyes og God, and he loves us the same. No matter what we have in common. I was born with something called a byladeral cleft pallate, and I have gone through MANY surgeries. I have a problem with my right nostril. I can't breathe through my right side, because a bone blocks it, and my brain comes down to the tip of my upper part of my nose, so the Doctors are trying to debate weather they want to fix it, because they don't want to risk damaging my brain. I have to use several pieces of equipment like a suction machine, a aerosol compresser, and a nebulizer, that I use to help break up secretions. I have LOTS of sinus trouble, because I cannot breathe through my right side, so when my left side gets stopped up, I am in a lot of trouble because i have to breathe through my mouth, and when I have my breathing trouble in my mouth, like when my asthma acts up, I have to really struggle to breathe. I don't have the cillia in my nose, the (Hair like particles that help keep the nose moist and clean, so when I get a sinus infection, the bacteria is able to get in there easier. Sence I can't breathe through my right side, I have to get the junkies out with a machine called a suction machine. It is a machine where I use a small catheter to get the stuff out. It can be kind of grose, but I have to use it. I use the mist aerosol compresser to keep my airways moist. It connects to a long flexible blue tube, that goes to a trap that collects water and then the moist air goes up through another tube that goes into a mask, and into my airways. This is what they use on trach patients that have tokeep their airways moist, because the tracheostomy site bypasses the humidification aspect of the airways.
I am visually impared. I can see 4 out of 20. I was born with microopthalmia, and with glaucoma. But a very kind and gifted Doctor by the name of Dr. Abel was able to go into my right eye, and fix that. He made a pupil. The left eye was not salvagable, because the eye was too small. I have to use several pieces of equipment to help me read, that (Talks to me), and things that help me braille with a machine so I can read. I read with my fingers and the braille consists of dots. The braille cell consists of six dots. Each dot makes a symble or a letter. A group of those dots on a paper makes letters, words senences. I can read really quickly, and I can see print, but not as well as most people. I have a machine that magnifies the letters, and pictures so I can read them better.
I don't let my blindness get me down. I still pursue my life, and will NEVER let anything stop me. I play the piano very well, and a few people say i set the piano on fire, but I just say in the reply, "Go get the water hose than." hahahahahahahahaha. Seriously, I A A STRONG MAN. I can do ANYTHING IF I PUT MY MIND TO IT. ANYTHING. I am a very tallanted man, and am writing this all by myself. I can type up to 100 words per minute. I can play pieces on the piano like the Pachelbel's Canon, the piece Minuet in G Minor by J.S. Bach, a little bit of the Prelude in C Major by J.S. Bach Book I from the Well Tempered Clavier, a Minuet in C Minor by J.S. Bach, from the ANH Bach notebook a Minuet in G Major, by J.S. Bach, a bit of Fur Elise, and a few other pieces. I love the Minuet in G Minor. Its my favorite piece, because its so soothing. When I hear it, I feel myself out on a sommer night, walking, and I can see green flashing lights in front of me. There is a LONG story behind the Minuet, but I will get to that later.
I love medical equipment. I have to use a lot of it, and I have had to spend most of my life around it. Because my parents take special needs children, so they have had to use lots of medical equipment. I have helped with the care of them. I remember when i was first getting the interest in the equipment, I was learning how the suction machine worked. I had a doll that I named Sweet pye, and I would pretend she was sick, and needed to be suctioned out a lot. I put her on oxygen, would check her oxygen, and was CONTINUOUSLY getting into stuff I wasn't suppose to. I would always be in the pulse oximeter, the suction machine, the apnea monitor, the nebulizers, etc. I can't tell you how many times I hav had to hear, "Peter?What are you doing with the suction machine?" I am suctioning my little baby out." She needs to be suctioned. I think I need to put her on some oxygen, because her sats are 82%, and I don't wanna have her going into Respiratory Arrest, and me having to bag her and intubate her. Oh no. That would be BAD. Peter? Please leave the suction machine alone. Its NOT A TOY. But I wanna have it. NOOOOOOO. Leave it alone. A few days later. I do it again. I just want to let you know, that I have been through a lot, but when people say that, and say, "Peter You're a fighter, I say, Listen." " I have had an easy life. There have been people who have been through A WHOLE LOT MORE THAN I HAVE. Sure Ihave to carey a suction machine around with me when I go on long trips, but some children have to carey an apnea monitor, a ventilator, a suction machine, an oxygen cylender, a sim's adapter, vent tubing, mist collars, trach care supplies, and other things. I only have to carey a few things like my portable machine that helps mewrite.
So, complain I DO NOT.
I just say, "Well, I have a very nice life, and Jesus Christ died for me on the cross, so I have a BIG THING to be happy about.
I am tryng to do research on a disorder known as Tay-Sachs disease, which is a disorder, in which an extra gene is present, and it stops the production of an enzyme, that is vital in breaking down GM2 Gangliocides. When these build up in the body, they damage the cells and the child sadly ALWAYS dies between the ages of three and five years of age. I am hurt by this disorder, and hate it when I see or hear of children who have it. I mean, This disorder is very sad. Because the chld loses the ability to sit up, to roll over, to move, to hear to se, to swallow, and to breathe. I've always wondered how these poor children feel in a bed all hooked up not able to do anything. I mean, itsheatbreaking to think of it. Please help in research, and hlp us find the CURE FOR THIS DISORDER.
Thank you for all the support you have given me.
I look forward to posting my blog updates everyday.\
GOD BLESS
My name is Peter Johann Pachelbel, and I am a tender hearted young man, who cares a LOT about people. All of us are equal in the eyes og God, and he loves us the same. No matter what we have in common. I was born with something called a byladeral cleft pallate, and I have gone through MANY surgeries. I have a problem with my right nostril. I can't breathe through my right side, because a bone blocks it, and my brain comes down to the tip of my upper part of my nose, so the Doctors are trying to debate weather they want to fix it, because they don't want to risk damaging my brain. I have to use several pieces of equipment like a suction machine, a aerosol compresser, and a nebulizer, that I use to help break up secretions. I have LOTS of sinus trouble, because I cannot breathe through my right side, so when my left side gets stopped up, I am in a lot of trouble because i have to breathe through my mouth, and when I have my breathing trouble in my mouth, like when my asthma acts up, I have to really struggle to breathe. I don't have the cillia in my nose, the (Hair like particles that help keep the nose moist and clean, so when I get a sinus infection, the bacteria is able to get in there easier. Sence I can't breathe through my right side, I have to get the junkies out with a machine called a suction machine. It is a machine where I use a small catheter to get the stuff out. It can be kind of grose, but I have to use it. I use the mist aerosol compresser to keep my airways moist. It connects to a long flexible blue tube, that goes to a trap that collects water and then the moist air goes up through another tube that goes into a mask, and into my airways. This is what they use on trach patients that have tokeep their airways moist, because the tracheostomy site bypasses the humidification aspect of the airways.
I am visually impared. I can see 4 out of 20. I was born with microopthalmia, and with glaucoma. But a very kind and gifted Doctor by the name of Dr. Abel was able to go into my right eye, and fix that. He made a pupil. The left eye was not salvagable, because the eye was too small. I have to use several pieces of equipment to help me read, that (Talks to me), and things that help me braille with a machine so I can read. I read with my fingers and the braille consists of dots. The braille cell consists of six dots. Each dot makes a symble or a letter. A group of those dots on a paper makes letters, words senences. I can read really quickly, and I can see print, but not as well as most people. I have a machine that magnifies the letters, and pictures so I can read them better.
I don't let my blindness get me down. I still pursue my life, and will NEVER let anything stop me. I play the piano very well, and a few people say i set the piano on fire, but I just say in the reply, "Go get the water hose than." hahahahahahahahaha. Seriously, I A A STRONG MAN. I can do ANYTHING IF I PUT MY MIND TO IT. ANYTHING. I am a very tallanted man, and am writing this all by myself. I can type up to 100 words per minute. I can play pieces on the piano like the Pachelbel's Canon, the piece Minuet in G Minor by J.S. Bach, a little bit of the Prelude in C Major by J.S. Bach Book I from the Well Tempered Clavier, a Minuet in C Minor by J.S. Bach, from the ANH Bach notebook a Minuet in G Major, by J.S. Bach, a bit of Fur Elise, and a few other pieces. I love the Minuet in G Minor. Its my favorite piece, because its so soothing. When I hear it, I feel myself out on a sommer night, walking, and I can see green flashing lights in front of me. There is a LONG story behind the Minuet, but I will get to that later.
I love medical equipment. I have to use a lot of it, and I have had to spend most of my life around it. Because my parents take special needs children, so they have had to use lots of medical equipment. I have helped with the care of them. I remember when i was first getting the interest in the equipment, I was learning how the suction machine worked. I had a doll that I named Sweet pye, and I would pretend she was sick, and needed to be suctioned out a lot. I put her on oxygen, would check her oxygen, and was CONTINUOUSLY getting into stuff I wasn't suppose to. I would always be in the pulse oximeter, the suction machine, the apnea monitor, the nebulizers, etc. I can't tell you how many times I hav had to hear, "Peter?What are you doing with the suction machine?" I am suctioning my little baby out." She needs to be suctioned. I think I need to put her on some oxygen, because her sats are 82%, and I don't wanna have her going into Respiratory Arrest, and me having to bag her and intubate her. Oh no. That would be BAD. Peter? Please leave the suction machine alone. Its NOT A TOY. But I wanna have it. NOOOOOOO. Leave it alone. A few days later. I do it again. I just want to let you know, that I have been through a lot, but when people say that, and say, "Peter You're a fighter, I say, Listen." " I have had an easy life. There have been people who have been through A WHOLE LOT MORE THAN I HAVE. Sure Ihave to carey a suction machine around with me when I go on long trips, but some children have to carey an apnea monitor, a ventilator, a suction machine, an oxygen cylender, a sim's adapter, vent tubing, mist collars, trach care supplies, and other things. I only have to carey a few things like my portable machine that helps mewrite.
So, complain I DO NOT.
I just say, "Well, I have a very nice life, and Jesus Christ died for me on the cross, so I have a BIG THING to be happy about.
I am tryng to do research on a disorder known as Tay-Sachs disease, which is a disorder, in which an extra gene is present, and it stops the production of an enzyme, that is vital in breaking down GM2 Gangliocides. When these build up in the body, they damage the cells and the child sadly ALWAYS dies between the ages of three and five years of age. I am hurt by this disorder, and hate it when I see or hear of children who have it. I mean, This disorder is very sad. Because the chld loses the ability to sit up, to roll over, to move, to hear to se, to swallow, and to breathe. I've always wondered how these poor children feel in a bed all hooked up not able to do anything. I mean, itsheatbreaking to think of it. Please help in research, and hlp us find the CURE FOR THIS DISORDER.
Thank you for all the support you have given me.
I look forward to posting my blog updates everyday.\
GOD BLESS
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