Hi.
How are you all doing?
I am not doing too well. I'm having some bad health issues. Lots of snot, and stuff, and my hip is really having a BAD day.
If you read, well I had to have surgery. I had to stay overnight in the hospital, and was VERY SICK.
Not only did they take bone marrow out of my hip, and put it in my fistula, that was in my mouth, but they pulled six teeth out.
The worst part was, (I WOKE UP WITH THE BREATHING TUBE IN MY MOUTH.
IT WAS NOT PRETTY.
It was painful, and I would rather not talk about it, because it freaks me out when things happen like that.
But, yeah.
I stayed overnight, and the nurses were VERY VERY VERY VERY nice.
An RT even brought an oscillatory ventilator in just because of my desperate plea.
I woke up, and I went home the next day about 5:00-6:00.
It was a long day, and I had to go home with an IV like device in my HIP.
It was removed by my mother that Munday morning, because It hurt, and was coming out.
I woke up, and there was BLOOD EVERYWHERE.
It scared me A LITTLE BIT more than half to death.
Of corse, I woke up from a creepy dream as well.
The medications were on, were causing that.
Right now i'm just sitting here.
I cannot walk, bccause it just hurts TOOOOOOOOOO BAD!!!!!!!!!!!!!!!!!
Emma Mae the person I wrote about in my blog was layed to rest Friday morning.
PLEASE pray for the family.
Thank you.
I need to go, and suction myself out for I don't know the how manyith time.
Probably the 160th time.
I have done it A LOOOOOT TODAY.
God bless, and Much love and respect.
PETER JOHANN
Showing posts with label pulse oximeter HFOV ECMO EEG Tay-Sachs Momoftwinsplus1 Sandhoff Surgery date apnea monitor Spo2. Show all posts
Showing posts with label pulse oximeter HFOV ECMO EEG Tay-Sachs Momoftwinsplus1 Sandhoff Surgery date apnea monitor Spo2. Show all posts
Saturday, May 16, 2009
Sunday, April 5, 2009
Tour and Ohio
Hello again everyone.
How are you all? Other than some health problems I am doing all right. I've been retty sick with a bad cough, and have been suctioning myself A LOT. 30 to 40 times a day. WOW! I know what some medical people are probably thinking. Are you serious????????? YES.
I AM.
Thankfully to some of my YouTube friends such as piano6861 Katybrewer, and piano50 I have been getting better. They have been praying for me.
This week I will be gone a lot.
Tusday I am going to lexington first to see my ENT. Ear Nose and Throat Dr. The one who did my nose surgery. My right nostril closed up again, and my right and left sides have been bleeding. So I may have to have another surgery. I'm already going to have to undergo another surgery that I already had done. In 2006 I had a bone graph to close a fistula in my front of my mouth, the very top. They took bone from my hip, and placed it in that fistula. There were LOTS of problems. I would wake up in the morning even weeks after the recovery, and my Mom would say, "You look like you have been in a fight. There is blood on your face, on your arms and hands, on your shirt, and on your pajamas." It was horrible. I threw up after the surgery. Yeah. I think my heart rate sped up to at least 200 when the Dr. said I would have to have the surgery (AGAIN). I still now even cry because I mean, I was doing so well. A few months after the surgery I had in 2006 I went back to the Dr. for my fifth and last post-op evaluation, and I remember him saying, "You won't need anymore. And the room I was in had an ECG monitor, and i remember saying, "YAYYYYYYYYYYYYYYYY. Did you hear that monitor? I don't have to have another surgery."
Two weeks ago, there was the same monitor in a different room. I remember him telling me I would need to have another surgery. It felt like the monitor as watching me. I mean, the monitor was in there, and I had told it I wouldn't need another surgery. So it and a couple other pulse oximeters were there to witness the seen.
Funny how I think machines are real people. Well, I have been around machines so much, they are like my brothers and sisters.
So I left after saying, "I will see u later monitor when i come for my PRE-OP EVALUATION."
YUP.
I mean, I was doing soooooooooooo well, but then I have to endure the surgery again.
Oh well, I'm sure everything will be just fine. It could be A LOT worse. I have it EASY compaired to some people. Some people have to lye in a bed hooked up to machines all their lives, and who cannot breathe, hear, see, speak, or even move. I can move around. With help sometimes I can breathe, and if I can't, I am just put on a ventilator for a few days, or a few weeks. That's it.
Well we will be going for my ENT appointment in Lexington, and then will be going straight from there to a tour in another appointment. Dr. John W. Kitchens is a retina specialist, and he comes to my eye instatute, and he sees me once a year and does an ultrasound of my eye. He knows how obcessed I am with pulse oximeters, suction machines, HFOV machines, et etc etc etc etc etc etc etc etc.
LOL.
He has invited me down to his office to take me on a tour of his facility. As you can imagine, I have been so excited. On the 7th of April at 11:30 I'm going to be going on the tour. I will be videotaping it with the Dr's. permission. I already videotaped him doing the ultrasound, so I can tell you right now that he will most likely allow me to video tape him taking me on a tour. He will be taking me and doing LOTS of his tests on me. He will even let me see his operating sweet. And you know what is in there. Pulse oximeters, ECG machines, suctioning equipment, and lots and lots of other coooool equipment. AWWWWWWWWWSOME.
This will be AWWWWWWWSOME.
Yes. AWSOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
After the tour we will be going to Ohio to see my Grandma, and Grandpa for a few days.
So I will be updating you from my Mm's computer hopefully.
Well, have a good day everyone. God bless.
Much Love and respect, Peter Johann
:)
P.S. You never know what i may come home with. Who knows, maybe my Dr. will allow me to take his pulse oximeter home. LOL.
hahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahaha
How are you all? Other than some health problems I am doing all right. I've been retty sick with a bad cough, and have been suctioning myself A LOT. 30 to 40 times a day. WOW! I know what some medical people are probably thinking. Are you serious????????? YES.
I AM.
Thankfully to some of my YouTube friends such as piano6861 Katybrewer, and piano50 I have been getting better. They have been praying for me.
This week I will be gone a lot.
Tusday I am going to lexington first to see my ENT. Ear Nose and Throat Dr. The one who did my nose surgery. My right nostril closed up again, and my right and left sides have been bleeding. So I may have to have another surgery. I'm already going to have to undergo another surgery that I already had done. In 2006 I had a bone graph to close a fistula in my front of my mouth, the very top. They took bone from my hip, and placed it in that fistula. There were LOTS of problems. I would wake up in the morning even weeks after the recovery, and my Mom would say, "You look like you have been in a fight. There is blood on your face, on your arms and hands, on your shirt, and on your pajamas." It was horrible. I threw up after the surgery. Yeah. I think my heart rate sped up to at least 200 when the Dr. said I would have to have the surgery (AGAIN). I still now even cry because I mean, I was doing so well. A few months after the surgery I had in 2006 I went back to the Dr. for my fifth and last post-op evaluation, and I remember him saying, "You won't need anymore. And the room I was in had an ECG monitor, and i remember saying, "YAYYYYYYYYYYYYYYYY. Did you hear that monitor? I don't have to have another surgery."
Two weeks ago, there was the same monitor in a different room. I remember him telling me I would need to have another surgery. It felt like the monitor as watching me. I mean, the monitor was in there, and I had told it I wouldn't need another surgery. So it and a couple other pulse oximeters were there to witness the seen.
Funny how I think machines are real people. Well, I have been around machines so much, they are like my brothers and sisters.
So I left after saying, "I will see u later monitor when i come for my PRE-OP EVALUATION."
YUP.
I mean, I was doing soooooooooooo well, but then I have to endure the surgery again.
Oh well, I'm sure everything will be just fine. It could be A LOT worse. I have it EASY compaired to some people. Some people have to lye in a bed hooked up to machines all their lives, and who cannot breathe, hear, see, speak, or even move. I can move around. With help sometimes I can breathe, and if I can't, I am just put on a ventilator for a few days, or a few weeks. That's it.
Well we will be going for my ENT appointment in Lexington, and then will be going straight from there to a tour in another appointment. Dr. John W. Kitchens is a retina specialist, and he comes to my eye instatute, and he sees me once a year and does an ultrasound of my eye. He knows how obcessed I am with pulse oximeters, suction machines, HFOV machines, et etc etc etc etc etc etc etc etc.
LOL.
He has invited me down to his office to take me on a tour of his facility. As you can imagine, I have been so excited. On the 7th of April at 11:30 I'm going to be going on the tour. I will be videotaping it with the Dr's. permission. I already videotaped him doing the ultrasound, so I can tell you right now that he will most likely allow me to video tape him taking me on a tour. He will be taking me and doing LOTS of his tests on me. He will even let me see his operating sweet. And you know what is in there. Pulse oximeters, ECG machines, suctioning equipment, and lots and lots of other coooool equipment. AWWWWWWWWWSOME.
This will be AWWWWWWWSOME.
Yes. AWSOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
After the tour we will be going to Ohio to see my Grandma, and Grandpa for a few days.
So I will be updating you from my Mm's computer hopefully.
Well, have a good day everyone. God bless.
Much Love and respect, Peter Johann
:)
P.S. You never know what i may come home with. Who knows, maybe my Dr. will allow me to take his pulse oximeter home. LOL.
hahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahaha
Friday, February 20, 2009
Hi.
Hi everyone. How are you? I'm fair. I am kind of stopped up, and am sad for a person named Jay who's eight years old. He has CP. someone on YouTube who's username is Momoftwinsplus1 told me about it. He has CP, and is really sad because he's just having a hard time. If you could I would REALLY apreciate it if you would put him in your pryaers, and help spread the word. Thank you. God bless.
Much love and respect Peter Johann
P.S. ONLY FIVE MORE DAYS UNTIL THE BIG SURGERY DATE!!!!!!! Some friends on YouTube are going to be praying for me. One was, but I don't know if she is now. LOL. We will see. She has kind of let me down right now. She says one thing, and then said another that really tells me that she may be just saying good things about me to make me happy. If that is the case I really don't call her a friend.
God bless.
Much love and respect Peter Johann
P.S. ONLY FIVE MORE DAYS UNTIL THE BIG SURGERY DATE!!!!!!! Some friends on YouTube are going to be praying for me. One was, but I don't know if she is now. LOL. We will see. She has kind of let me down right now. She says one thing, and then said another that really tells me that she may be just saying good things about me to make me happy. If that is the case I really don't call her a friend.
God bless.
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