Hello to all. Long time no post.

Hi.

Long time no see.

How are you all?

I am doing great.

I have not posted in a long time.

I have good news for you all.

On Feburary 25, 2009 I'm going into have a surgery to remove the bone that is blocking my right side of my nose so I can breathe better. The Drs. are hoping to make tiny incisions in my nose, and use endoscopy as well as other imaging technology to remove the foregn bone in my nose. If that works out than it will most likely be an outpatient surgery. An ENT that is VERY specialized in this kind of major stuff will be doing this. HOWEVER if they are unable to remove the bone that way they will most likely have to open up my head and work around my brain to get the bone out which could put me in the hospital for days even weeks. For 17 years I have had to deal with continuous effort filled ilnesses that have left me in the hospital and on other things that are VERY VERY VERY VERY VERY VERY VERY VERY VERY uncomfortable. Well, HOPEFULLY this will work. My Mom is debating weather to even let them do the major part if they have to. She is going to let them do the endoscopy part, but if they have to do the crainiotomy she does NOT want to risk ruening my eye sight because they will have to work around my optic nerve if they end up having to do a crainiotomy. The hospital I stay at is an hour and ahalf away from where we live, so Mom and I will be going to a Hotel and staying the night beofre, and if I am permitted to get oreleased from the hospital that day than we will go to a hotel that night and stya because my Mom does NOT want to risk me going home and something bad happening and not having enough time to get there like me bleeding to death or something. A YouTube friend Username: Momoftwinsplus1 has been helping me through it all. She prays for me, and so does her daughter who has CP. They all have been praying for me. THE WHOLE CHURCH HAS BEEN PRAYING FOR ME. I have total trust in God that he will take care of this, and even if the surgery fails and my Mom decides not to have the crainiotomy I know that God will help me bear the pain of grief of failure after the surgery. I know when I hear the bad new,s, I will be crying for a VERY LONG time, but I will get over it, because I will know that it was for the best. I know that God NEVER makes mistakes, and that he knows what's best for his children. If he thinks that they are best left alone than he will let it be and if he thinks that THEY NEED SOME HELP than he will mke known. God NEVER makes mistakes.



I learned that from Momoftwinsplus1. She taught me through videos, and through MANY MANY MANY MANY MANY MANY MANY MANY MANY MESSAGES that I am a special human being and that God loves me VERY VERY VERY VERY VERY VERY VERY VERY VERY MUCH!!!!!!!!!!!!!!!!!!!

I trust in him. I know that whatever happens is for the VERY BEST!!!!!!!!!!!!!!!!!

I know that he takes care of me, and will NEVER let me down.

So, I will be keeping you posted. Now if the crainotomy takes place a neuro surgon wil be there on the same day, and he will just be called in and will perform the surgery.








Lori told me she would be praying VERY VERY VERY VERY HARD that I would be just fine.

I know when she prays because I feel MUCH better when she prays.

Thank you everyone.

Much love and respect, Peter Johann

Mommy.

Hi.

How are you all doing?

I just want to take a minute to talk to you all about my Mommy.

I have really been blessed to have a Mom like her.

If more people had a heart like her, I KNOW that the world would be a MUCH better place. God love us all, and to few people reallize that. We all need to reallize that God created us, and we are each unique. We don't have to worry about what color our hair is, what color our eyes are. You know why? Because its what God wanted them to be. God knows BEST. GOD NEVER makes mistakes, and never will. He created us, and you know, he is the ONE AND ONLY creater. He created this earth. He said for it to be done, and it was done. He knows our every weekness, and wants us to know that he loves us ALL. Nothing we do could change his love for us.

God will always love us, and will take us to Heaven one day. He cares for us, and loves us.

Thank you God for providing me with such a BEAUTIFUL, and loving mother.

Much Love and respect Peter Johann

P..S. All men are equal in the eyes of god!

BACK.

Hello everyone!

Its me again.

I am BACK.

I had my teacher to come out, and he gave me a lecture, and talked to me, about studying, and while at the same time, I'm listening to my History, to CONCENTRATE.

I have to listen via CD.








What he is talking about, is he wants me to study, and while I'm listening to my history, and school work, not to let my mind attempt and rome, and to get on where it feels best at.

Pulse oximeters, ventilators, suction machines, HFOVs, ECMO machines, EEG machines, ECG machines, defibrillators, Tasers, etc.

IT IS VERY HARD, when you have NO interest in the stuff you are studying, but I HAVE TO DO IT.

ALTHOUGH, I would RATHER NOT.

hahahahahahahahaha.

But, I NEED TO.

Worked with my mobility teacher, and we went to the court house, to practice on the steps.

While there, we explored the building.

We went to the court room, and I could NOT stop touching all the equipment, so she was continuously having to say, "Peter?, don't touch that. Peter? we can't touch that. Peter? If you can't quit doing that, we'll have to go OUT. Peter? If you push that button again, we are GOING OUT."

Its how i am when I get around equipment.

Oh, my goodness, I can't even BEGIN to explain to you the circutry board in my head, and the way it gets all loopy, when there is a machine in my reach.

Its just my way.

I'm the technical kind of guy, that is obcessed with the newest technology.

So, PLEASE, make sure that you watch out when you come across a cool machine, and I am, nearby it.

If I SEE IT, I AM PREPELLED TO IT, and before you know, its time to push buttons, turn dials, pull levers, flip swiches, move wires, push the button with the red light, play around with that clear knob, take appart a few things, press a few more buttons, and, do everything else.

WATCH OUT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1

I AM OBCESSED WITH HIGH TECH MACHINES.

If I see one, I am going to go RIGHT TO IT.

ALWAYS.

Unless you tase me.








ITS THE WAY MY BRAIN WAS CONFIGURED AT BIRTH.

I came out asking, "Can I touch the oscillator? Just one look at that pulse ox, Let me feel that vent. Let me touch the suction machine. Let me play around with that apnea monitor. Let me see that baby who is on the ECMO. Let me see the defibrillator. Can I play around with the FREQUENCY on the HFOV?

May I feel the blue tube on that baby?"

Much love and respect, Peter Johann

Good morning.

Hello, everyone!!!!!!!!

How are you?

I am doing great!

I slept last night, and only woke up a couple of time. I had a dream about a ventilator. A baby was on a ventilator, in an incubator, and was AT MY HOUSE. Yes, it was a strange dream, but this baby was at my house, and I think she was born at 22 weeks. She was on a conventional ventilator, and had an ET tube i. I remember sticking my hand in the incubator, and touching her legs. I remember they were VERY small, and were very skinny. She was a VERY premature baby. I remember her on a BUNCH of other machines. A few pulse oximeters, an ECMO machine, I think there was an HFOV by her bed that would be used if she needed it. She was on a few IV lines, and some other things. Well, it was VERY weird dream, but I have extremely weird reams ALL OF THE TIME. Today I am having my teacher come out, and then my mobility teacher is coming and we are going to the court house, to work on propper Kane technique up & down stairs. HMMMMMMMMMMMMMMMMMMMMMm, maybe I can talk someone into letting me see a taser eh? Or maybe I can even shoot a taser.

hahahahahahahahaha

I have to go, but I'll update you on how everything goes when I get back.

Much love and respect, Peter Johann

Hello.

Hi.

How is everyone?

I'm doing better.

I had a very good night last night.

The other night, I was up, and didn't get much sleep at ALL.

BUT, I am doing MUCH BETTER.

I am now following a blog.

YES.

Its so nice.

The URL is below.

U all should follow it too.

Its great!

http://thepreemiemile.blogspot.com/

Well, anyhow, I have had a nice day, and have not had very many sinus problems.

WELL, except for this infernal draining.

:(

Oh well, it could be MUCH worse.

ehehehehehehehehehe

I am now sitting in my room, and am thinking about a story I read today.

Its about the which craft trials.

How sad.

They accused LOTS of people about which craft.

If people thought you were a which, they would do horrible things to you, like put you in the river.

If you survived, you were a which.

If you were a which, you were killed.

Most likely hanged.

So, anyway you put it, you died USUALLY.

How sad.

Its horrible how people were treated.

I feel VERY sorry for all those men and women.

Well, I have to go eat.

P.S. I E-Maied Santa yesterday, and told him I want a cough assist machine, a pulse oximeter, and an apnea monitor.

hahaha.

Much love and respect Peter Johann

Good night.

Well, I am going to hit the sack.

hahaha.

I am doing MUCH better. I have used my humidifier, with the blue tubing, and that has REALLY helped me. I may one day have to stay on it 24/7.

I would hate for that, but it may have to happen. IF I HAVE TO HAVE A TRACH.

NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!!!

Well, if I do have to have a trach, I am sure I won't die.

Afterall, I coud have it A LOT worse.

I cd be nying in a crib with Sandhoff disease, and hooked up to TONS of equipment, and having to be suctioned every few minutes.

BUT I AM NOT.

I have it REALLY EASY.

So, if I ever DO have to have a trach, I know it will be for the best.
Well, good night.

Much love & respect Peter Johann

Sick.

Hello eveybody.

How are you?

I'm not doing too well.

I'm having trouble coughing stuff up.

As some of u know, the other night, Last Sunday to be Exact, I accidentally aspirated some on my pediasure. YEAH. I've been having problems everysence.

I'm not weezing, so my Mom does NOT think it is pneumonia. BUT IT FEELS AWFUL. I am having trouble breathing, and really can't get a good breath in.

I have also been having little incedents where I get chokes on my food but not NEARLY as halfway as bad as Sunday.

I am having trouble swallowing these days.

If things start going downhill I MAY have to use a tracheostomy.

NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO.

NOT A TRACH.

If I was told I had to have a trach, I would faint. The shock would possibly send me into a panick attack. YES. That is how much I fear a trach. Please. DO NOT DO A TRACH unless you have to. Of corse, it might help with my lungs. My lungs are not doo well right now.

I am really having a LOT of trouble breathing.

Well, I need to go and try to get some of this junk out of my lungs.

God bless.

Much love and respect Peter Johann

P.S. May God bless you and keep you in his outstreched hands, and may you NEVER forget that he loves you EVERY MUCH!!!!!!!!!!!!!!!!!!!!!!!!!